Thank-you to everyone for all of your tips.  It is so great to be able to hear things from people involved with seizures, other than doctors. 

I do keep a very detailed journal of Jameson's meds, doctor appointments, treatments, what he eats, what he does, his mood, his gains and losses.  He jokingly said to me the other day that his boxers had fish on them in case I needed to document that as well. 

As for the medication issues, we've dropped and added so many different combinations and when one seems to work and we add another it throws it all off.  Chemistry, as Tim put it, is so complicated, I couldn't begin to understand it.  We did have him off the ADHD meds for awhile and that seemed to work then out of the blue he had a horrible spell of seizures that sent him to the hospital where they added the ADHD meds again and the seizures stopped.  The feeling as of right now is that without the ADHD meds he becomes too restless, anxious and intense that it causes seizures and it is better to have him on it and deal with the other side effects in another way.  Doctors (I say doctors because we have seen more than I can count on both hands) feel that the medication might not be giving him long term relief because as a teenager his normal body chemistry is all out of sorts and he hasn't finished growing, changing and developing yet.  They seem to feel that once all of that is over with it will be much easier to find a solution.  I accept that explanation but I find it very frustrating that he has to "grow up" before he can feel any relief. 

This is in response to Tania Jaye,

Welcome, I read your brief bio of yourself and you said you have problems with doctors and medications. First I'm on my third doctor.  He is awesome but the first one was horrible and the second one was good but not as good as the doctor i have now. He cares about his patients and is a good person. So you may have to go through a few to find a good one.

You stated you Take Keppra,  well heres a few things that i've learned about keppra. I'm currently on it and i have been on it for 2 years now i think. It is an awesome drug when used right. My primary med i use is Tegratol XR. When this fails the Keppra is the back up. It isn't ment to prevent seizures but to stop them from spreading when they start. I've had siezures start then keppra kick in and kick butt. When keppra came out there was only the original company that made it. Now there are 11 companies making it and they don't make it to the "T" like the original company so there is some flux in how well it may work. The original company does however make Keppra XR and they are the only ones who makes that so you get a constant product(drug).  XR just means it's Time Released.

So things to consider:  1. Used Keppra XR as a backup to a primary medication.  2. If you go generic make sure you go with the same manurfactorer each time. You go about this by talking with your pharmacist. 3. Find a doctor that you like. There are very few good Neurologist out there. Once you find a good one hold on to him/her.  4. If you do decide to switch doctors make sure you get a copy of your file before you switch just incase if they jerk you around about switching. Tell them you just want it for your own record. (I learned that trick when the hospital my doc worked for and my doc were at a toss up with his contract. So i made sure to get my file just incase he left the hospital) 

I hope that helps some and if you have any questions about what i said just ask,

-tim